Comments for Hayden's Journey - Living with Wiskott-Aldrich Syndrome by Rick & Kami Blatter - Sun Prairie, WI http://www.haydenblatter.org/blog Hayden's Journey - Living with Wiskott-Aldrich Syndrome by Rick & Kami Blatter - Sun Prairie, WI Thu, 11 Mar 2010 19:53:05 +0000 http://wordpress.org/?v=2.3.3 Comment on The hickman is otta here! by shashankgupta225 http://www.haydenblatter.org/blog/index.php/2009/02/18/the-hickman-is-otta-here/#comment-499 shashankgupta225 Fri, 19 Feb 2010 21:03:52 +0000 http://www.haydenblatter.org/blog/index.php/2009/02/18/the-hickman-is-otta-here/#comment-499 Here is a link to more information about the genetics of Wiskott-Aldrich Syndrome that was prepared by our genetic counselor and which has links to some useful resource for those dealing with this condition: http://www.accessdna.com/condition/Wiskott-Aldrich_Syndrome/741. There is also a number listed for anyone who wants to speak to a genetic counselor by phone. I hope it helps. Thanks, AccessDNA Here is a link to more information about the genetics of Wiskott-Aldrich Syndrome that was prepared by our genetic counselor and which has links to some useful resource for those dealing with this condition: http://www.accessdna.com/condition/Wiskott-Aldrich_Syndrome/741. There is also a number listed for anyone who wants to speak to a genetic counselor by phone. I hope it helps. Thanks, AccessDNA

]]> Comment on 1 Year Transplant Anniversary right around the corner! by bee http://www.haydenblatter.org/blog/index.php/2009/06/30/1-year-transplant-anniversary-right-around-the-corner/#comment-308 bee Wed, 01 Jul 2009 10:26:38 +0000 http://www.haydenblatter.org/blog/index.php/2009/06/30/1-year-transplant-anniversary-right-around-the-corner/#comment-308 One Year! WOW! Congratulations...here's hoping all Tuesday's appointments have great news to report. xx One Year! WOW! Congratulations…here’s hoping all Tuesday’s appointments have great news to report. xx

]]> Comment on No news is good news! by PaigeWelborn http://www.haydenblatter.org/blog/index.php/2009/06/02/no-news-is-good-news-2/#comment-281 PaigeWelborn Wed, 10 Jun 2009 20:25:54 +0000 http://www.haydenblatter.org/blog/index.php/2009/06/02/no-news-is-good-news-2/#comment-281 All awesome stuff, Kami! I SO can't wait until I can write similar things about Ayden!!! I love reading your blog because it gives me so much hope! :-D All awesome stuff, Kami! I SO can’t wait until I can write similar things about Ayden!!! I love reading your blog because it gives me so much hope! :-D

]]> Comment on Isolation is lifted! by Shayna Courtier http://www.haydenblatter.org/blog/index.php/2009/03/19/isolation-is-lifted/#comment-250 Shayna Courtier Fri, 27 Mar 2009 20:27:46 +0000 http://www.haydenblatter.org/blog/index.php/2009/03/19/isolation-is-lifted/#comment-250 This is excellent news! I look forward to finally see the little guy tomorrow! This is excellent news! I look forward to finally see the little guy tomorrow!

]]> Comment on Isolation is lifted! by ostrengaj http://www.haydenblatter.org/blog/index.php/2009/03/19/isolation-is-lifted/#comment-249 ostrengaj Fri, 20 Mar 2009 14:17:48 +0000 http://www.haydenblatter.org/blog/index.php/2009/03/19/isolation-is-lifted/#comment-249 Awesome news on the isolation lift!!!! Awesome news on the isolation lift!!!!

]]> Comment on Isolation is lifted! by PaigeWelborn http://www.haydenblatter.org/blog/index.php/2009/03/19/isolation-is-lifted/#comment-248 PaigeWelborn Fri, 20 Mar 2009 00:40:56 +0000 http://www.haydenblatter.org/blog/index.php/2009/03/19/isolation-is-lifted/#comment-248 That is AWESOME, Kami! I'm so glad to hear that! He can finally go run and play outside like a normal little boy. He must not know what to do with all the new stuff! :-) That is AWESOME, Kami! I’m so glad to hear that! He can finally go run and play outside like a normal little boy. He must not know what to do with all the new stuff! :-)

]]> Comment on Update for this week! by PaigeWelborn http://www.haydenblatter.org/blog/index.php/2009/02/27/update-for-this-week/#comment-237 PaigeWelborn Fri, 06 Mar 2009 09:02:39 +0000 http://www.haydenblatter.org/blog/index.php/2009/02/27/update-for-this-week/#comment-237 Wow, I don't know how you'll do it in 20 - 25 minutes! That's really awesome, though. I figure the more people who know about WAS, the better, right? Any luck with Oprah? :-D Wow, I don’t know how you’ll do it in 20 - 25 minutes! That’s really awesome, though. I figure the more people who know about WAS, the better, right? Any luck with Oprah? :-D

]]> Comment on Update for this week! by BobMahoney http://www.haydenblatter.org/blog/index.php/2009/02/27/update-for-this-week/#comment-235 BobMahoney Tue, 03 Mar 2009 22:23:46 +0000 http://www.haydenblatter.org/blog/index.php/2009/02/27/update-for-this-week/#comment-235 Great to see that Hayden continues to heal and that his new immune system is growing into its job. Good luck with your talk; you should be able to inspire many to do what they can to help out. Warmest regards, Bob Great to see that Hayden continues to heal and that his new immune system is growing into its job.

Good luck with your talk; you should be able to inspire many to do what they can to help out.

Warmest regards,

Bob

]]> Comment on The hickman is otta here! by PaigeWelborn http://www.haydenblatter.org/blog/index.php/2009/02/18/the-hickman-is-otta-here/#comment-208 PaigeWelborn Wed, 18 Feb 2009 21:48:41 +0000 http://www.haydenblatter.org/blog/index.php/2009/02/18/the-hickman-is-otta-here/#comment-208 Awesome! I know he doesn't really know the difference, but I'm sure y'all are relieved. It is SO hard to keep little kids occupied without food! I've only had to do it once so far, but I'll have to do it again on March 9 for Ayden's Infant PFTs. NOT looking forward to that. So glad to hear everything went well! Awesome! I know he doesn’t really know the difference, but I’m sure y’all are relieved. It is SO hard to keep little kids occupied without food! I’ve only had to do it once so far, but I’ll have to do it again on March 9 for Ayden’s Infant PFTs. NOT looking forward to that. So glad to hear everything went well!

]]> Comment on Tuesdays Day Treatment by ostrengaj http://www.haydenblatter.org/blog/index.php/2009/01/21/tuesdays-day-treatment/#comment-195 ostrengaj Sat, 31 Jan 2009 17:24:44 +0000 http://www.haydenblatter.org/blog/index.php/2009/01/21/tuesdays-day-treatment/#comment-195 Long time no chat! Looks like the last few weeks have been another series of some potentially serious stuff. You guys are so on point & are making all the rights calls it seems like! I am glad this last update seems to be on the up & up. It's just about February, which means that spring is closer than ever. Hopefully when the weather gets nicer it'll be more uplifting, even though going out & about will still be at a minimum. Hang in there, enjoy the Superbowl & hope to see you all soon! Love Ya! Jen O Long time no chat! Looks like the last few weeks have been another series of some potentially serious stuff. You guys are so on point & are making all the rights calls it seems like! I am glad this last update seems to be on the up & up. It’s just about February, which means that spring is closer than ever. Hopefully when the weather gets nicer it’ll be more uplifting, even though going out & about will still be at a minimum. Hang in there, enjoy the Superbowl & hope to see you all soon! Love Ya! Jen O

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