After 9 months of isolation, Hayden is free to go out and enjoy life! It is hard to think of being home-bound for most of his short life. Now Rick and I have to loose the mindset of isolation. Since he has been diagnosed we have kept him away from the general public, so we find it difficult to change our ways. A person becomes aware of germs on carts, library books, church pews, schools and restaurants. Did I miss anything? Of course the workplace too!

We have planned to catch up on many zoo visits, camping trips, train shows and of course take Hayden fishing with dad!

Hayden’s day treatment appointment on Tuesday included his monthly clinical, which went well, and an IVIG. Since he does not have his hickman, nurses had to put in an IV which went well. They put the IV in the top of his hand so he could still use his arm and hands.
They wrap his hand up so he doesn’t pull the IV out. It looked like he had a little cast on. At least they used green wrap to celebrate St. Patrick’s day!

I still will continue to wipe down the carts and high chairs a the places we visit, until we revaccinate him in July. On Friday we have an appointment with the Urologist to consult about his circumcision. (sp)

Hayden’s is talking a little bit but we are going to address this with 0 to 3 program to make sure all areas of his hearing are normal. I didn’t talk until almost 3, so I am not as worried as Rick is. It is a normal concern, I know.

Hayden is enjoying his stroller rides with the caregivers, mom and Abby. We have been to the park in our neighborhood 3 times already since the warm weather knocked on our door! This weekend I plan to bring them to a bigger park, if weather permits, to have a picnic!

We still have to stay out of daycare until July. With him not being fully vaccinated, there still are risks with being around other children. With Rick working so many hours now during tax season, it gives him the opportunity to take some time off in summer to stay with him when Grandma, Liz and Lori aren’t available. I have a busy summer at work with events, so this all works out well!

KB

I came across this song the other day. I first heard it on David McNally’s web site. When we first found out Hayden’s WAS diagnoses, we started looking for anyone/anything to give us encouragement, we found hope on the McNally’s website. The song is written by Mark Schultz really summarizes it all!

http://www.youtube.com/watch?v=VgEDOOOi2r4

This is for Declan, who is going through his WAS Bone Marrow Transplant right now and Ayden, who will start his BMT in March and all the other little boys with WAS-you are loved and so many people are praying for your strength! You will beat this one day at a time! One transfusion at a time!