Good to be home

Hayden and Rick returned home from the hospital late (last) Wednesday night. He had been diagnosed as having pneumonia and a staff infection. Both very serious for a normal person let alone a post bone marrow patient. He is on Nafcillin for 4 weeks.
We immediately had to unpack Hayden and get him set up for his antibiotics through the IV. The schedule is every 6 hours to start the IV and it is suppose to go for 30 minutes, it actually takes 40 minutes. We start at 11pm, again at 5am and go through the day 11am-working into his nap time and again when I get home from work at 5pm. That equals no solid sleep for me or Rick!

The medication seems to make Hayden a little ornary, but he is also learning the temper tantrum thing too, so a combination sure gets our attention. Since Hayden has a very limited vocabulary (Abbeee, Mama, Dada and ugh) he gets frustrated when I don’t respond to his pointing. He knows basic sign language words but doesn’t always use them. But as we did for Abby’s tantrums years ago, we stand back, keep him safe and wait for him to stop his tatrum. It takes just a few seconds to end.

He is back to his normal playing and eating routine, and roaming of the house just cause he can walk now.

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