The plan is to send Hayden home today after 5 days in the hospital. Four days were in isolation, meaning nurses and doctors all wore gowns and masks in the room to protect other patients from a potential RSV virus that Hayden was tested for. They do a nasal swab and send it out which takes days for results to come back. Each time we are in the hospital they do one on him and thankfully they have all come back NEGATIVE! So then everyone stops wearing the gowns and masks.
Hayden always remains in his room when we are at UW since we are still in isolation for post BMT at home. It decreases the possibility of him getting any other illness from kids that are also in the hospital. Also even though Hayden had vaccinations up to 4 months of age, his body now after transplant does not have any memory of them which makes him succeptable to Chicken Pox or any other serious illness.

We had our old BMT room again which brought back memories of our 6 week stay. This time though, Hayden is walking and has found “forts” to play in instead of the playmat. There is a clothes cabinet with double doors, which opens up to a 3′ cubby. Hayden will climb inside it and close the doors and play. You can hear him talking giberish and saying his favorite word “ABBY”. I wish I brought my video camera to capture it.

Also, Abby has shown him how to crawl under the crib and onto a shelf below it. He looks through the crib rails that slide down. What a card!

It will be interesting going home on the coldest day of the year. Thank goodness for parking ramps and garages-we won’t have to take him out in the elements.

This entry was posted on Wednesday, January 14th, 2009 at 10:55 am and is filed under Journal Entries. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.