IVIG for cold today!
BUN 29 (still high, should be 5-18)
CO2 content 19 (should be 22-32)
WBC 9.1
RBC 3.5 a bit low
Platelets 357 (wish we could give some to Ayden and Nolan!)
ANC 5300
Today Hayden got IVIG for a boost on his immune system. Hopefully it will help kick the cold. Abby decided she wanted to come with today, which meant Hayden didn’t want to nap because he is too busy watching Abby. They both feel asleep on the way home so at least they got a half hour nap in.
Hayden’s BUN is still high at 29 so we continue the fluids to keep him hydrated, but we anticipate only a few more weeks of that since we started .2 and .3 on his Cyclosporin today. Hayden still has that rash I spoke of a few weeks back. I thought it was changing lotions. Hydrocortizone takes it some what away so we are thinking it is still the mild version of GVH. Doctors Delgado, and DeSantes looked at it today along with Sharon, (NP) and aren’t too concerned because it doesn’t cover over 50% of the body. This means additional steriods aren’t needed-thank goodness, his temper is bad enough on cyclosporin.
I slather on Hydrocortizone twice a day along with Eucerine lotion to keep the rash down. My plan was to start back at work 100% after the new year. Well, my time spent medicating Hayden has increased, once he wakes up at 7:30 or I wake him at 8am, it now takes me longer to get meds and lotions done.
It is also TAX SEASON so I am solo in the evenings except for Wed. We will do bath and dressing change that night and then again on the weekend. The rest of the time I just wipe him down with a wash cloth if needed.
On Thursday I will find out if Sue can continue to help on the weekdays with Hayden. She goes back to work so it will be schedule and health permitting. Otherwise I will have to find a nanny for 3 days. Tuesdays I am usually off with day treatment or clinic, and once a week a family friend, Liz, watches him.
Since Hayden is walking he only stops to eat and sleep, otherwise he is wondering around the house non-stop. It tires me out watching him and my house is in shambles since he picks things up as he moves and drops them as he sees something else to play with!
Abby has been acting up lately-not listening and talking back, and time-outs aren’t working as well. We decided we have to take another approach. Instead of constantly repremanding we will go back to the sticker method I used for potty training. She get’s a sticker for good behavior and good listening, once 10 stickers are in a row she can choose a day out to Chuckie Cheese, open gym, Children’s museum or ice skating with dad or mom!
I’ve got to get Hayden to bed again, he went down for a nap at 7pm and slept for an hour. Now he is up and has no intention of going to bed at his bed time! Crazy kid!