This is Rick, I haven’t done a post in a while. 

Not much new to report from Hayden’s appointment on Tuesday.  His BUN level is down to 36 which is still too high but much better than last week, I guess the eight hour IV is helping.  His breathing is the same, not getting any worse and the inhalers are helping. 

He is down to 4ml in the morning and 5ml at night for the Cyclosporine.  This is down from 9ml morning and night.  Going down 1 ml per week he will be off completely in 9 weeks.  This means his immune system will be able to do it’s job without being suppressed.  Remember it is suppressed to prevent GVHD, which is when his new immune system identifies his body as foreign and tries to destroy it.  To date he has had very few symtoms of GVHD, and currently he has none that we are aware of which is great. 

Little Abby is doing okay.  She’s in pain and is uncomfortable but is being a very good girl.  She had her toncils and adnoids removed yesterday.  Everything went fine.  The doctor said her worst day will be in about five days, with her being fully recovered in about 10.  Right now we are letting her do whatever she wants and letting her eat whatever she wants.  She has been watching movies  and eating popsicles, orange sherbet ice cream, apple sauce, pudding, and eggs.  The egg (soft) eating is probably unique but so is my little girl.

I’m going to put some new pictures on that show how big Hayden is getting.  You can also see his hair.  He looks good, it has grown to about a quarter inch all around which is a good style for him.  Maybe I’ll see if Kami will do some photoshop work putting him in one of my old military pictures when I had my hair about that length. ¼/p>

This entry was posted on Saturday, December 6th, 2008 at 11:19 am and is filed under Journal Entries. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.