Day Treatment on Tuesday
Tuesday we had an appointment for IVIG, to help boost his immune system. We have a doctor come down to see Hayden while we are in our day treatment room, that is our BMT clinic appointment too. A 2-in-1 appointment!
Counts came back normal, except for the BUN. It was very high this week (49) which means the kidneys are not happy. That is really weird because we are decreasing his Cyclosporin med each week, the BUN should be going down slowly. So we just had to increase his fluids at night from 250ml to 500ml with sodium. That just means they will run 8 hours instead of 4. More sleep for me, unless he creases his tubing like he did last night. He is hooked up to a pump that beeps until the tubing is cleared again. Of course Rick NEVER hears the thing beeping, just me! the sodium is to increase his acidic levels, which is a serious thing, but why not add it if we are doing fluids anyways.
Unfortunately, we are staying home for Thanksgiving, Rick and I and the kids will enjoy each other’s company all day with a turkey, and the fixings to eat throughout the day too! We plan to decorate the tree and by the time Rick and I are done making the food, we will be ready for a nap!
Hayden’s cold is getting better! He will remain on his inhalers throughout the virus season to keep his lungs clear and hopefully keep him out of the hospital. The lung Dr. thinks he has viral indused asthma, so with that diagnoses, we will keep up with inhalers and hope he doesn’t get any other sickness!
Hayden is very excited to be sporting a new pair of shoes-Robeez, he loves things on his feet, so I hope he will be able to walk a little better with these than with his slippery slippers! Robeez are a leather slipper-like shoe that cost an arm and a leg, (but I got my online, clearanced, so they were cheaper) but so worth it. Abby had pink ones w flowers on them, and she lived in them. You can wash them and they STAY on their fat feet too!
Happy Thanksgiving!
December 1st, 2008 at 2:49 pm
Just wanted you to know I was thinking about you guys & hope you had a nice Thanksgiving together all cozy at home. I’ll keep my fingers crossed through cold & flu season for all of you. Good luck to Abby on Friday - St Nick will have to be extra nice to her
December 4th, 2008 at 8:05 am
My son was diagnosed with WAS 8 weeks ago and I just found your website. Thank you for your courage in documenting your journey. Hayden is so beautiful and we wish him a speedy recovery and full emergence into the amazing world around him.