We haven’t received Hayden’s lab results back yet, but with what Dr. DeSantes concluded on Tuesday’s visit, he is looking great! We have once again decreased his cyclosporin to .7 twice a day. (5% decrease) and stopped his Raninadine (stomach antacid)  and decreased his Isradipine (blood pressure med) to 1ml twice a day. Less meds for him to take. We will still continue with his antibiotics for flungal infections and viruses, and his inhalers to keep those lungs clear and junk free.
 We continue to give him fluids at night to keep his kidneys happy, again his BUN is at 36, way too high. Once the Cyclosporin is stopped then the fluids can stop and I can start to sleep through the night again.

This past week Grandma Sue was in the hospital for blood clots in her lungs, she is doing well and expects to come home this week yet, we miss her and truly realize how lucky we are to have her around during the week to watch Hayden.

Hayden has stopped signing all together now. This is frustrating because all we hear is whining. He looks at me with a blank look each time I show him the sign. I can’t tell if he has just forgot them or if he is just being stubborn.

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