Day +88, Clinic results
BUN 19 (good, could be lower though)
Wht cells 7.9
Hemoglobin 10.4
Platelets 234k!!!!!! ( I am sooo jealous, I’m sitting at 75k)
Neutrophyl 5,000+
Liver enzymes are looking good!
Clinic day update. Usually we are scheduled to be seen at 1pm, we were seen at 2:30 thanks to Dr. DeSantes who noticed we were not on the schedule at all for our BMT clinic app. We were told 1pm the last appt so I was planning to be there at that time. Nurse Peter called our home in the morning to set up an appointment, I was confused telling him we are to be seen at 1pm. There wasn’t anything scheduled for Hayden. UGH
Wouldn’t be a huge deal except we hold his Cyclosporin med that day so we can take blood labs for a weekly reading. That is the important steroid that controls GVH disease. We have to be within a troff period for the test to be precise.
It wasn’t until 6pm that we finally got labs drawn. As it happened twice before, Hayden’s hickman tubing formed blood clots inside so it worked just fine to flush his lines, but once we tried to extract blood, the lines were clogged. The nurse explained it as a flap that forms, it flows one way but seals up when you change directions. We were sent back down to our wonderful friends in Day Treatment. Denise filled the lines with a larger dose of tpn to dissolve the blood form in the line. The draw worked and we were out of there in minutes!
All numbers are looking good for Hayden, we are still working to iron out that cyclosporin level. They want us to increase from .7ml to .8ml which Rick and I don’t agree with. The count was way out of the troff area, so it technically is off. Not a huge change, so we will see what next weeks level brings.
His blood pressure is finally going down, Liz held his noon dose of Isradipine with a reading of 100/75 which is on target for him right now. He still continues to look hairy. Those brows are dark and hopefully won’t fill in, even so, he still will be so handsome!
Oh, and the most important thing going on in his life, he is teething again. Those eye teeth (fangs) are coming in just in time for Halloween! It is so cute but you can tell he is feeling them! He is such a trooper with the pain!
KB