Hayden is still hanging on to his cold. It is mild, less drainage, but we still address his breathing with inhalers which seem to work well. Hopefully, this Tuesday’s clinic appointment will show a good cyclosporin level and BUN level for kidneys.

This past Saturday was just a beautiful day, so Hayden got to mask up and go outside to enjoy the fresh air. Abby and I went to Mt. Horeb festival with her daycare friend, Brianna, Clara, who is Hayden’s age and of course Mama Wendy. Afterwards we watched the kids jump on the trampoline while Hayden watched Clara (from a distance) the whole time. It was just so cute to see him watch people. I can’t wait until they can interact and even be at daycare together. Two little red heads=trouble!

Hayden has pretty much lost all his hair and his eye brows are really getting dark from the cyclosporin (steroid) med he takes. When he got home from his BMT he still had patches of hair, now it is fuzz. He also has quite a hairy face from the steroid, Rick teased that he should be a warewolf for Halloween! Hayden will be happy being my cuddly teddybear or Daddy’s little sidekick, since he adores Daddy so much!

In all seriousness, I was looking back at our last year with the kids. From the excitment of bringing Hayden home when he was born to our long hospital BMT stay with him this past July, I know that with every hard situation that God gives us there is a lesson to learn from it. My biggest lesson I take home is NEVER take my kids for granted. I am blessed to have had the opportunity to become a mom.¼br> Knowing I can not have any more maternal children because of WAS, I get angered seeing sick kids (at the hospital) who’s parents are not by their sides to comfort them, to reassure that they will be okay, to just hold their fighting little bodies and make them feel better. I pray that those parents refocus their lives on their child.

We have a long ways to go yet with Hayden’s BMT care, but to see him happy, playful and this healthy from his new stem cells, reminds Rick and I that all the time and energy we have put into Hayden’s care has saved his life! It is 150% worth every sacrifice!
And we couldn’t have got to this place without your prayers! Thank you!

This entry was posted on Monday, October 6th, 2008 at 10:46 am and is filed under Journal Entries. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.