Day 60
wbc 8.8
ANC 6600
platelets 182k
BUN 21 (was at 28)
Hayden is your tipical 1 year old busting into cupboards, crashing my pots and pans, helping unload the dishwasher and exploring new areas of the house each day.
Dr. DeSantes continues to be happy with his progress. His red rashing has decreased some to allow us to reduce the predisolone to 1ml! This is great news, with his cold still lingering the steroids aren’t helping it. Tuesday, the nurse explained that the steroid is suppressing his immune system, and the IVIG is trying to boost his immune system so the faster we get rid of the steriod and let the IVIG do its job, the faster Hayden will fight the cold.
So we continue to do nebulizer treatments twice a day (he really sits well cause we read to him, Abby picks out the books each time), 6 medications by mouth, and 250 ml of fluid each day, which means 4 hours of being hooked up to a line attached to a pole which we carry around the house as he crawls or rolls around in his walker. We do notice that Hayden sleeps better with the fluids and nebs and his breathing is more normal.
September 11th, 2008 at 2:34 pm
Kami - Hang in there honey! I can’t imagine the vigilant care you need to be giving Hay-man on your own this week, but I assure you that you are an incredible person for being able to do it! I am very excited to see how well things are going & can’t wait to see you guys, hopefully real soon! Love you all - Jen