Comments on: 100% engraftment! http://www.haydenblatter.org/blog/index.php/2008/08/29/100-engraftment/ Hayden's Journey - Living with Wiskott-Aldrich Syndrome by Rick & Kami Blatter - Sun Prairie, WI Sun, 20 May 2012 06:23:37 +0000 http://wordpress.org/?v=2.3.3 By: Derek http://www.haydenblatter.org/blog/index.php/2008/08/29/100-engraftment/#comment-549 Derek Thu, 29 Jul 2010 22:29:35 +0000 http://www.haydenblatter.org/blog/index.php/2008/08/29/100-engraftment/#comment-549 I know this a bit late, and from a stranger no less, but congrats! My son went the bone marrow route, and was successful. He had the bonemarrow transplant at 18months old. We had some small setbacks (the bone marrow started attacking the red blood cells) but after a few rounds with chemo (drugs, no radiation) he now has a normal immune system! I think we did ivig for an additional 18 months after the transplant. We were able to do them at home with the Hickman line. We kept him away from kids (and sick adults) untill he was 6 (he was home schooled, as the teachers from the school came to us) But January of 2009 he entered public school and is doing good! I am glad to hear the stem cell transplant worked. We were given that option in new york, but decided to go the bonemarrow route from the advice of Dr hanns Ochs (person who invented the test for was) I know this a bit late, and from a stranger no less, but congrats!

My son went the bone marrow route, and was successful. He had the bonemarrow transplant at 18months old. We had some small setbacks (the bone marrow started attacking the red blood cells) but after a few rounds with chemo (drugs, no radiation) he now has a normal immune system!

I think we did ivig for an additional 18 months after the transplant. We were able to do them at home with the Hickman line.

We kept him away from kids (and sick adults) untill he was 6 (he was home schooled, as the teachers from the school came to us)

But January of 2009 he entered public school and is doing good!

I am glad to hear the stem cell transplant worked. We were given that option in new york, but decided to go the bonemarrow route from the advice of Dr hanns Ochs (person who invented the test for was)

]]> By: kikilee http://www.haydenblatter.org/blog/index.php/2008/08/29/100-engraftment/#comment-128 kikilee Sat, 30 Aug 2008 02:59:45 +0000 http://www.haydenblatter.org/blog/index.php/2008/08/29/100-engraftment/#comment-128 Yeah Hayden!!!!! Way to engraft! I'm going to buy you a little t-shirt that says "I'm 100% engrafted!"! Keep up the good work!! Auntie Kiki Yeah Hayden!!!!! Way to engraft! I’m going to buy you a little t-shirt that says “I’m 100% engrafted!”! Keep up the good work!!

Auntie Kiki

]]> By: Worm Family http://www.haydenblatter.org/blog/index.php/2008/08/29/100-engraftment/#comment-127 Worm Family Sat, 30 Aug 2008 01:17:54 +0000 http://www.haydenblatter.org/blog/index.php/2008/08/29/100-engraftment/#comment-127 That is wonderful news, can't tell you how happy we are. Love to all. That is wonderful news, can’t tell you how happy we are.

Love to all.

]]>