Hayden still remains at .3 for his white blood cell level. His TNA feeding has decreased to 20hrs/day. For four hours (4pm-8pm) he is off the nutrition. He continues to eat well, still working on getting normal stools but at least they are coming, slowly.

He is still in a very good mood, playing, laughing, and eating well. He tired himself out early today with a small nap in the afternoon, so it wasn’t even 7pm and he was nodding off in the exersaucer. I held him for a while and then retired him to his comfy bed!

Tomorrow is another busy day in Hayden’s room!

Abby is doing really well with having Hayden gone so long. She loves coming to the hospital to play in the playroom while Rick and I take turns with each of them. She recently made a “wishing tree” with Child Life volunteers and wished on all the leaves for Hayden to come home.  Abby, Grandma JoAnne and I met Kate and Michael (my friend and son) at the Farmer’s Market by the Capitol today. It was so nice to get out and spend time with Abby. Abby wanted to go into the Capitol so we toured it a bit while using the restrooms. She thought that was pretty neat! Of course we had to get cheese curds and spicey cheese bread from Stella’s too!

Rick and I are getting used to the crazy schedule of living in two locations, but can’t wait till we can go back to normal.

kb

This entry was posted on Saturday, July 26th, 2008 at 6:25 pm and is filed under Journal Entries. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.