Hayden is having a GREAT day today. His mouth pain is down enough that he is eating and drinking his bottle. He has eaten some puffs and cheerios too which helps work on his pincer finger developement.

He used to be good with taking his medicine orally, but is now fighting us on that even though they are flavored. We seem to get them down with the help of his nuk. I am waiting for some prunes to feed him today to get the bowel working. With his levels so low, any small problem is a big problem like no poopies.

kb

White cell ct    3.7

red cell ct         3.0 received red cell transfusion, his first ever

hemoglobin     7.8

Neutrophl      3600 (strange, this should be going down)

Platelets         31k (60k drop in one day)

He ate a huge helping of mashed potatoes and gravy this evening, then I saw his face turning red and he started grunting, he then laughed so the pooping issue is over.  I again encouraged him to do this when mommy is here.

Tomorrow we will cut his hair because it will fall out soon. 

rb

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