Check-in day
We are pretty much settled in at UW Children’s hospital. We are in isolation in the BMT unit of pediatrics. So far it has been non stop nurses and doctors coming in to introduce themselves if we haven’t met or getting updates from the last time we have seen them. Between getting vitals, blood draws, Physical Therapy (PT), and Occupational Therapy (OT) we will have a full schedule each day. Rick is taking night duty at home with Abby tonight. We have decided to rotate each night or every other until next week when we have a room at the Ronald McDonald house right down the road.
Hayden was in a good mood all day despite a short nap this morning and a late afternoon nap at 4pm. He woke up very crabby, drank 10 oz of formula, still wasn’t happy, tried some ice cream to sooth his mouth from the teething, didn’t work, finally I made up another 4 oz of formula which he drank most of it and then fell back asleep. The nurse couldn’t believe the food this kid eats! We will see if he sleeps through the night or if this is just a nap!
Abby was very sad this morning knowing Hayden was going away. She was crying and telling us that she didn’t want him to go. We told her we would take her pictures she colored to him and hang them up for Hayden and reminded her of the fun things she has coming up with Auntie Kiki, the Grandparents, and even visiting the Ronny house next week. Rick is home with her tonight and has a few special things planned to do with her this week.
Tomorrow morning at 6am starts the first dose of Busulfan, every 6 hours for about 6 days. Then after the 6 days he starts on Flubarabene (too tired to look up spelling right now).
Our first visitor was Pastor Tweit from our church, Holy Cross in Madison. Hopefully tomorrow I will catch up on responding to emails and writing more!
Good night!