Weekly update
It has been a few days since I have given an update-sorry! We are very busy trying to get things in order before Tuesday check-in into UW Children’s Hospital, Madison.
We have received most of his tests back that were done at UW hospital and all look very good. There was a small hemmorhage detected in the front of his brain, 3mm, but doctors aren’t too concerned, they say that it is old and nothing can be done with it now. It could have come from one of his very low platelet days right before a transfusion.
We are still waiting for results from Dean, this is why we wanted all tests to be done at UW so we would have all our information reviewed by the BMT doctor before we checked in on Tuesday. Either way we check in on Tuesday (July 1) and start chemo on Wednesday, July 2 (day -10). I can’t lie, we are scared to death as to what Hayden will have to go through.
Some rules for Hayden’s stay are:
1. Visitors are limited to immediate family only to keep out germs.
2. No live plants or flowers will be allowed in Hayden’s room, cards are welcomed
3. No children can enter Hayden’s room, must be over age of 7. Sadly, Abby too.
4. Anyone staying with Hayden can not eat or use restroom in his room.
I am trying to put together a photo book for him to look at while we are in isolation of family and friends. I seem to have lots of pictures of the Blatter clan (thanks to Grandma Sue) but I would love pictures from the Augustine clan! Hopefully JoAnne will come through for me!
Hayden’s health is pretty good these last few days, he got his transfusion on Wednesday along with IVIG to boost his immune system. He hung out with the day treatment nurses for a few hours while Rick and I met with the BMT doctors to finalize the plans. He was in between his “ladies” behind the nurses station when we came down to check on him. It was soooo cute seeing him with his IV pole flirting with the nurses.
The usual look on his face during transfusions is saying “hi ladies” as nurses walk by our room and wave at him.
kb
June 27th, 2008 at 4:58 pm
Hi all,
We are glad to hear that all of Hayden’s tests came back good! Hayden is in our prayers to stay healthy so he can get out of the hospital sooner. If there is anything for us to do to help let us know.
Love
Meitners and Wiedenhoefts
P.S. Kami you are doing a great job keeping us informed about what is happening with Hayden.
June 30th, 2008 at 1:41 am
Hi
I found your blog through David McNally’s. I just wanted to wish you all the best for the coming weeks. My son had his bmt for WAS last September and is doing great (www.williamandthebmt.blogspot.com)! It’s a difficult journey but keep strong and hopeful. All our very best wishes to you all. Catherine
June 30th, 2008 at 6:37 am
Best of luck tomorrow as this journey begins for you guys. You don’t know how courageous you all really are. We will be doing some super strong praying that these next weeks go by quickly for Hayden and that he will be well on his road to recovery soon. Hang in there & please let us know if there is anything we can do to help out. Love you guys! Jen & the Ostrengas
June 30th, 2008 at 2:10 pm
Hey guys,
It was good to see you all yesterday. We will be thinking of you tomorrow as the big guy starts his treatment. We are going to definately be by to visit sometime. Be strong, we know this is really hard. If there is anything you need you know we are here.
Love,
Katie and Kyle