Hayden’s weekend of fun
The tests last week went really well. Friday was the hardest day because Hayden could not eat most of the day. In the morning was his GFR proceedure, they put a small amount of radiation into him to see how his kidneys would filter it out and how they would react. They drew blood at two different periods to check results.
Hayden was able to eat in between the set of tests and have clear liquids throughout the day like juice, so two weeks ago, I started giving him some juice to get him used to the difference in formula and sweet juice.
In the afternoon was the CT Scan, for this he had to drink a coagulant at 3:30. It could be flavored so Rick picked banana and he seemed to like it. 45 minutes later he was injected with Barium which is used to make parts of the gastrolintestine opaque. This gives a better view for the technicians and doctors. The CT looked at his head, sinuses, chest, abdomen and pelvis for any sign of infections or other concerns that may be an issue during the transplant.
We will get test results on Wednesday at our 3pm conference with the transplant doctors.
Since these tests dehydrated Hayden, we were to give him plenty of fluids. Once he got home Friday, he drank 2 8oz bottles and a 4 oz juice within a 3 hour period. By bedtime he was flushed out and back to normal.
Saturday morning my long time friend Jenny Ostrenga came down from Green Bay to visit. We met up with my other long time friend, Kate Pelzer from Waunakee, and her son Michael who just turned 1. We all, including Hayden, went to the farmer’s market on the capital square in Madison to shop. It was so nice to get him out of the house, he just sat in his stroller and watched everyone go by and when we left the farmers market he continued to watch Michael who is crawling and just starting to walk. I think Hayden picked up a few tips from Michael in the crawling department cause last night we was practicing with his hind legs bent and arms locked and ready to move!
Tomorrow we have the Busulfan test which is a small dose of his chemo. They draw blood at very specific times to see how his body is absorbing the drug. They then can determine the exact amount to give him for July 1. It should last most of the day.
Abby comes back from Iowa tomorrow too. We have really missed her, but we know she is having a great time playing at the park, helping Kristin with her foster kittens, visiting Chris’ pigs, playing with Teban and Gracie II (dogs) at the farm, and being in a parade with Kristin!
June 23rd, 2008 at 8:55 pm
If you need anything just ask, you are in our prayers.
Todd, Lori, Jeremy & Andrew