Schedule of events
Since we have a check-in date planned for UW we really have to get the pre-BMT tests scheduled. So all next week we have tests;
Monday-9am Echogram, 10:30am Audiogram
Tuesday-1pm platelet transfusion
Wednesday-am VCUG at UW (dye test for kidneys)
Thursday-am Ultrasound
Friday-am GFR hydration (lab tests), CT scan
The following week we have the Busulfan Parmacokinetic study, which is the chemo drug that he will be on after July 1. They will give him a dose of the drug and watch to see how fast his body absorbs, so they know how much of a dosage to give him for his actual treatment.
On Wednesday, June 25 we will again have Platelets, IVIG, and our final consultation with the BMT staff to sign all the consent forms and discuss details of the proceedure.
As this date comes closer, Hayden is starting to sleep through the night as I stay awake thinking about what that little man has to go through these next weeks and during his chemo. It is finally hitting me, where as I think it hit Rick a lot earlier, when I was just focused on keeping him healthy, lotioned up, medicated, and living a normal life.
So many wonderful friends and family have come forth to donate their time, services and words of encouragement to help us get through this. We plan to stay at the Ronald McDonald house for the first week or so while he undergoes his chemo (if vacancy). This will help us save on gas and allow us to be close to him at all times, one of us will stay in his room 24/7 of course throughout the 6 weeks.
Abby and the dogs will remain at our house at that time with my sister, Kristin-I hope, and switch off with grandparents after that. We really want her to remain in daycare to keep some normalcy in her life since her parents won’t be present for days at a time, which is going to be different for her.
more to come….
June 20th, 2008 at 2:47 pm
Thank you so much for keeping us informed. Your journey is a remarkable one, and one that touches many hearts. Your spirit, grace, and hope has helped me appreciate so many things that I used to take for granted. Many prayers are with you, and even if that is the only thing we can do, we will do it with gusto! Betty