WE HAVE A DATE!
You all have been waiting, asking when this all will happen. July 1 we will check into UW Children’s Hospital, Madison WI to begin the transplant conditioning protocol. “Day Zero” is the day the stem cells enter into Hayden’s blood stream, when his immune system is fully suppressed and his bone’s have been cleared of his marrow. This is scheduled to be July 11, barring any issues arising.
Hayden will be in the Bone Marrow Transplant unit for at least 6-8 weeks (longer if complications). He will then be released to go home with many stipulations and follow up clinic appointments like platelet transfusions and IVIG treatments.
Hayden’s health update
Hayden is still fighting his cold but all fluids remain clear and are not causing congestion. Yah! He also was put on Amoxocillin (sp) for a positive anal strep culture.
We finally found a remedy to his severe cradle cap. Dr. Taylor prescribed drops that we put on Hayden’s cradle cap and rub it around. In the first dose, it cleared up but we continue to apply it as prescribed.¼br. We still apply Aquaphor lotion from ear to ear on him so his eczema stays at bay. If he scratches his dry eczema, he creates sores, which can become infected. So most of the time it looks like Hayden has greasy hair even though it was just washed.
As needed, I apply another ointment to any yeasty areas on his skin, under his neck and leg area as needed. It comes and goes. All the skin irritations are related to the WAS.
TMP Salfate is still given to him on the weekend twice a day, which helps boost his immune system.
I finally figured out the amount of medical supplies to order from Home Health for a two week period. It shouldn’t be too hard to count up all the saline, safe-sight-valves, gloves, etc I use in a weeks time, but since I am also drawing his 1ml of blood twice a week it adds a few more supplies to the overall inventory.
kb
June 10th, 2008 at 7:49 am
Wow, time is going to fly for the Blatter’s! While I can imagine the whole thing is scary, but since it’s inevitable, it is nice to have the dates set. We will continue to keep Mr Hayden in our prayers to stay healthy get thru the chemo as best as possible & that his transplant goes smoothly. I think you need to pursue a nursing degree with all the experience you’re getting with his care. You are an incredible person Kami! Anything we can help with, please please let us know. Maybe some more meals? Also, as a carrot dangler, Kate & I have picked the weekend of October 4th (Fri- Sun) as an official girls weekend - Hayden will be about 3 months post-transplant. Just keep that weekend in the back of your mind…. Keep us posted! Love you guys! Jen O
June 13th, 2008 at 7:50 am
Hello Blatter Family,
Just wanted to leave a note and let you all know that we are thinking about you. Hope everything is still going well and as planned. Hayden is so adorable….keeping mommy and daddy on their toes. Good luck with everything in the near future you will be in our prayers and thought….give us a call if you need anything at all!!!!
lots of love
Dan and Lori