Rick is bringing Hayden for platelets again today, Hayden lasted a whole week since the last dose! That is a good thing, he is staying consistant. His count is at 16k right before the transfusion.

We plan to meet with the BMT doctor to get more answers to our questions. Looking at the big picture, both Rick and I really want it to happen at UW, but we have reservations as to whether they know as much about the WAS transplant as they do about Cancer transplants. We only have one chance with this. Either way we HAVE TO DECIDE NOW! We are running into issues with the kidney testing that could just be handled at the BMT hospital instead of Dean.

Also in the works, UW is setting up a lab draw for both Hayden and my samples to be sent to the top Dr. of WAS in Seattle. There, they will create lines of our make up and determine a couple of things that will help Hayden after the BMT and these tests will benefit other WAS boys through their research. They will also determine whether I am a carrier of the WAS, which I am sadly, pretty sure I am. That means that more children is not possible without the gamble of WAS happening again. This and more I will address with a genetic counselor. Maybe this is God’s way of telling me, I am done having my miracles. I will then have to accept it and put that energy elsewhere!

Off to UW daytreatment!

kb

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