It is a coin toss right now to whether we stay or go home. We are at Day12 of crupe. I met with the doctors and nurses as they discussed Hayden’s condition today. He is at 50k for platelets today. They will bring this up to the autoimmune doctor the option of trying another prednisoLONE treatment for him. He woke up sounding really good, as he naps this morning, he sounds like he is working again. Last neb was 7:25 am, I will call for another neb once he wakes up.

All bathed and waiting for the neb treatment. The little 2 oz bottles of Alimentum that the hospital supplies are perfect for Hayden to hold. He thinks it is quite neat to feed himself.

Dr. Diamond has just been in to tell me the game plan. We are going to give one large dose of prednisoLONE via IV to Hayden today which will last about 5 days. Doctors are hoping this will get him over that hump we keep shooting for. Then we won’t need nebulizer treatments.

In addition to Hayden’s treatment today, I finally feel comfortable to learn how to draw a blood lab out of his hickman. The nurse will teach me this today before we go home. YES, I said go home! This will help in the days Home Health can’t be at our home by 8 or 9 am so we can get the blood tested in lab to see whether we are to go to day treatment for an infusion. Those beds fill up fast and nurses need to be called in day treatment so we really have to have some notice, plus we need to know what our day will consists of too.

Gotta go work on “Chester” again!

kb

This entry was posted on Friday, April 4th, 2008 at 12:00 pm and is filed under Journal Entries. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.