Today started out as a normal day treatment day with IVIG treatment and platelet transfusion. We added a Epi-nebulizer into the mix too to help with his breathing from the crupe. After much monitoring, Dr. Delgado decided that admitting him would be the best to get over this hump of the virus. This way we can give the epi treatment to him every couple of hours. He is off the prednisoLONE. We don’t want his thyroid thinking that it doesn’t have to produce steroids anymore.

Abby did come with us to day treatment today, she really did well, considering she has been acting out when we have to deal with any of Hayden’s issues like nightly flushes, dressing changes, or weekly blood draws. I just remind myself of what Super Nanny would do, or I call my sister who is a school psych. 

Rick picked up Abby this evening and met my parents at our house. They are going to take her back to Green Bay for a few days until the weekend. She is soo excited to spend time with them and get spoiled!

Hayden had his dressing changed for his tubing, a bottle and an epi-neb and is already sleeping by 6:30pm. Getting platelets really tired him out. Alas! alone time for me and rest for Hayden!

until tomorrow morning,
kb

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