Hayden is at Marci’s today. He has really done well with his platelet transfusion with no side effects except very stinky diapers, “what do you expect when you pump all that medicine and saline and platelets into me” he says!

Since I haven’t touched upon his other problems yet, lets just mention that he is teething, and WOW, everything is in the mouth or else there is drool coming out. So even though he has had medical challenges all his life, he is still reaching and conquering his milestones on time despite the 51/2 week prematurity! He is just about ready to roll over and holding his bottle is right around the corner. I think those little arms get a bit tired right now from holding it.

On Thursday morning at 7:30am, Hayden will get a “Port line” put into his chest vein. A small incision is made in the skin, and the needle/tubing will be placed under the skin so nurses can put an IV into the port to access a vein. This will remain in until his transplant. It is risky though, because they can sometimes become infected, which is the biggest thing we protect him from. We will spend the night Thursday to learn how to take care of the port and he will then get IVIG and platelets at that time.

Lastly, I am so excited to tell you all about Hayden’s NEW website that will be up and running very soon. Hopefully be the end of the week! It is his very own domain at www.haydenblatter.org. He is only 61/2 mths old and has his own website, pretty cool!

A HUGE Thank You to our neighbor and good friend, Tony Rodriguez and “Paul” of www.commercestreet.com for all your time and support you have given us for this website!

What a crazy weekend! On Friday morning we noticed blood in Hayden’s stools. Rick brought him into Dean Peds for a stool culture and was positive for blood. We had already been there at 8am that day for his routine blood draw. His Platelet count came back at 16K which was pretty usual for him.

His Pediatric Hemotologist, Delgado, at UW decided to admit Hayden to UW right away so he could get a platelet transfusion yet that day. So by the time we got to the Hospital it was a little after 2pm. The Day treatment nurses, ICU Drs., worked for over 6 hours trying to get an IV in him. After 9pm they finally had no more areas to tread and we went up to Intensive Care Peds to get a IV into his growing area vein. By this time Hayden was so exhausted from screaming, not eating and being held down that he has no energy. They gave him sedation drugs, and got the IV into the femeral vein. He slept for quite some time then.

They got the platelets pumping into him and by 2pm he had a wopping 152,000 platelets, which is the most he has ever had. I only have 74k right now, so he totally beat me!
We left the hospital Sat. afternoon and at that time his platelets had decreased to 135k, which is still good. We will watch this week to see how fast they go down, which will give drs. the information they need as to what his body is doing with the platelets-destroying them, or just not producing them…

On Sunday we had Hayden’s 6 mnth pictures done, which was challenging but fun! We all got our shot with him and then went out to dinner, which we haven’t done in a loooong time. We keep Hayden out of public to keep viruses and germs to a minimum, so this was a big deal to be out and about with him. He does great and loves to watch people.

Through this all, Abby has been staying with Uncle Dan and his fiance, Aunt Lori.

Today we meet with our Dean Advocate to discuss our options for hospitals. Though we have grown so dependant on UW staff, who are awesome and go above and beyond for Hayden and us, we must look at the hosp. that is familiar with Wiskott-Aldrich and transplants for this disease.

Also, by the end of this week, Hayden will have a permanent port line in his chest vein so we won’t have to have Hayden go through this again. He is doing really well now and we have to continue to pray that he stays healthy and his platelets stay up there in count.

I have attached his new 6mth photos for you to see!