I feel like our whole house is one giant germ, we all have mild colds, but Hayden’s is full blown due to the WAS. We still need to find out what his immune system is capable of in fighting infections and virus. We are waiting for the test results on this issue from the auto immune doctor at UW.

Since last Thursday we have been in and out of Dean clinic, twice a day, getting Nebulizer treatments with a steroid liquid, Epi-something. Hayden is still working very hard to breath. He remains on the PredisoLONE despite our HUGE concern that his body will not continue to produce natural steroids. But we must keep him comfortable and keep the fever down.

Hayden’s platelets are at 65k today, up from this past Friday which were at 59K. This is the first time they have gone up on their own, without a platelet transfusion. I owe it all to the PrednisoLONE which is a steriod, which has known to increase platelet levels.

Hayden has been out of daycare for a week and a half now, he gets to hang out with either Grandma or myself, which he doesn’t seem to mind at all!

We love hearing from you all, in support of our little man! Thanks for all the well wishes!

kb

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