Easter after the ER
Hayden did get to spend some of Easter Sunday playing with his Easter baskets with Grandma and Grandpa A., Auntie Kristin, and of course Mommy, Daddy, and Abby.
So in addition to the antibiotics he already takes twice a day on Saturdays and Sundays, Hayden is on PredisoLONE syrup, which he hates, and his Nebulizer, plus his daily flush of the hickman or changing of the dressing, which ever one is needed. We still do find time to play with his toys and read his favorite books.
Platelets are at 44k as of Sunday, we go again today for a finger poke to get a platelet count for tomorrow. On Tuesday at 9am we go for more platelets. Hopefully this transfusion will help with fighting the cold.
I have found, online, another boy who has WAS. He was diagnosed at 12 months old. His mother has journaled about his journey which I can’t wait to read now that our internet is working again. I will keep you posted on what I find out from David McNally, a BMT survivor. The song by Mark Schultz, “He’s My Son,” which I have uploaded to Hayden’s site, was borrowed from David’s website.
kb
March 24th, 2008 at 3:16 pm
It was sooo good to see our little man on Easter Sunday, even if it was just for a short time. We are so glad you didn’t have to stay in the hospital and that your crupe is getting better. Our prayers have been answered and they found a donor for you. Very soon you will be all well and grandma & grandpa can take you to the park and grandma can take you and your big sister for a walk. We love you and miss you (and Abby too) and we are praying for you every day. Love you all. Grandpa and Grandma A.