Preparing for a portline
Hayden is at Marci’s today. He has really done well with his platelet transfusion with no side effects except very stinky diapers, “what do you expect when you pump all that medicine and saline and platelets into me” he says!
Since I haven’t touched upon his other problems yet, lets just mention that he is teething, and WOW, everything is in the mouth or else there is drool coming out. So even though he has had medical challenges all his life, he is still reaching and conquering his milestones on time despite the 51/2 week prematurity! He is just about ready to roll over and holding his bottle is right around the corner. I think those little arms get a bit tired right now from holding it.
On Thursday morning at 7:30am, Hayden will get a “Port line” put into his chest vein. A small incision is made in the skin, and the needle/tubing will be placed under the skin so nurses can put an IV into the port to access a vein. This will remain in until his transplant. It is risky though, because they can sometimes become infected, which is the biggest thing we protect him from. We will spend the night Thursday to learn how to take care of the port and he will then get IVIG and platelets at that time.
Lastly, I am so excited to tell you all about Hayden’s NEW website that will be up and running very soon. Hopefully be the end of the week! It is his very own domain at www.haydenblatter.org. He is only 61/2 mths old and has his own website, pretty cool!
A HUGE Thank You to our neighbor and good friend, Tony Rodriguez and “Paul” of www.commercestreet.com for all your time and support you have given us for this website!
March 19th, 2008 at 2:24 pm
Glad I could help! I hope this page serves as a resource for you, and your family and friends. Our prayers are with little Hayden.